Online Resources

For patients and caregivers just coming to terms with a recent diagnosis, here are some helpful resources.

Fast Facts, FAQ flyer by the Carcinoid Cancer Foundation

Introduction to Carcinoid, taken from cancerback.org.uk website

Overview of Neuroendocrine Cancer, on the Neuroendocrine Cancer website

Carcinoid Screening, tests that can be done to confirm a diagnosis of Carcinoid or Neuroendocrine disease

Benefits of Gallium 68 PET/CT over Octreoscan and other similar targeted scanning techniques.

 

Other Support Groups

  • Carcinoid Cancer Foundation
    Established in 1968, It is the oldest and most well-known organisation in the world which is specifically focused on promoting awareness, education and facilitating research on carcinoid and neuroendocrine disease.
  • Carcinoid NeuroEndocrine Tumour Society Canada
    CNETS Canada is a charitable organisation principally serving Canadians, though it has an international following.
  • Carcinoid Neuroendocrine Tumor Society Singapore- An association of patients, caregivers and physicians, promoting better understanding of carcinoid and neuroendocrine cancer,
    a relatively rare disease which is poorly understood and is often misdiagnose